It seems to me, that the purpose of a blog is to open the window of your life. That way others can join your journey. If this blog becomes redundant, then please do not read. I know that there are some that have just tuned in at the commercial. I certainly will not be offended. It is a thrill and an honor to know that others are following my life’s journey, however personal and vulnerable it is. It is kind of like you coming into my house and washing my underwear. So, I’m pulling back the drapes at the window. Here goes………….
“When are we ever gonna get a grip on this disease?” Bonita and I ask ourselves this question daily. We are in our fourth year fighting Glioblastoma Multiforme (GBM). Recently one of the nurses in the MRI recovery room lovingly called me her “freak show.” She had never seen anyone living with this disease this long and loved the chance to be my nurse.
The word grip in today’s language has a two-fold meaning. One is a dictionary term that can mean several things: a tight hold, an understanding, a clinching grasp. The other meaning in the lingo of today’s world’s “get-a-grip” meaning is to get ahold of yourself and get the meaning of what is happening around you.
The first term is exactly what we have felt for four years on this journey of GBM . We have just been trying to understand the technical, intricate concept of this terrible disease. We have found no two cases are the same. No two physical bodies have reacted in the exact way. There are similarities, but no absolutes.
So, we “got a grip” yesterday when we met a man who had GBM for almost 9 years. But … he was still wondering when the disease would come back. Nine years of living day by day with GBM had found no absolutes for him either.
There is only ONE absolute: Christ is the same yesterday, today, and tomorrow. HE has been our absolute GOD. HE is our constant in this storm of every day uncertainty. HIS strength and might overshadow any doubt that arises and any fear that overcomes. HE has . . . “a grip” . . . and HE is the . . . “over-comer!”
For Jesus doesn’t change—yesterday, today, tomorrow, He’s always totally Himself. Hebrews 13:8 MSG
Steve- you and Bonita have Super Hero qualities that touch the hearts of 1000s of people! Of course we ALL know where your strength comes from!!! I always check for new posts- read your blog and ask mutual friends to get the newest updates! Since I learned your diagnosis, not a day has gone by that I haven’t prayed for you and your sweet family. I appreciate your posts so that I can be more specific! Thank you for being honest, open and vulnerable- you are teaching me and many others so much! In your weakness He has made you STEONG!!! Love you dearly!!! Marcia Looper
I love your blog! I love how honest you and Bonita are and I love how you always share your heart! And the way you use God’s word for strength and encouragement! Praying for you!